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{
    "id": 1121331,
    "url": "https://info.mzalendo.com/api/v0.1/hansard/entries/1121331/?format=api",
    "text_counter": 76,
    "type": "speech",
    "speaker_name": "Sen. Nyamunga",
    "speaker_title": "",
    "speaker": {
        "id": 738,
        "legal_name": "Rose Nyamunga Ogendo",
        "slug": "rose-nyamunga-ogendo"
    },
    "content": "In the Lake Region, it is estimated that about 17 per cent of the children are carriers of the trait, with 0.6 per cent having SCD, while in the Coastal Region, using inpatient data, almost 1 per cent of in-patient children have SCD and are almost 20 times likely to die compared to admissions of other morbidities. Sickle cell anemia requires treatment, medication and hospital stays. By the time SCD gets to a high level of severity to the extent of preventing the individual from working, it often leads to financial strain for both the individual and the family. Since sickle cell anemia is a disease that results in some form of physical disability, persons suffering from it should be considered for benefits entitled to PWDs. Due to the chronic pain in the bones and/or joints associated with SCD, an individual often suffers from deficiency in mental and cognitive abilities, thus making it difficult to maintain concentration throughout tasks. Crises, which are common in many people with SCD, can cause significant fluctuations in an individuals’ ability to function in the workplace. Further, depression from reoccurring and/or chronic pain is common with SCD, which can lead to problems with performance, including concentrating, keeping pace, remembering instructions and interacting with others appropriately. SCD patients incur other additional indirect expenses, including uncompensated care, premature mortality, low productivity and reduced quality of life, which are much higher than the financial figures. Having said the above, I wish to implore the Ministry responsible to consider classifying persons suffering from SCD as PWDs."
}