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{
    "id": 1520960,
    "url": "https://info.mzalendo.com/api/v0.1/hansard/entries/1520960/?format=api",
    "text_counter": 240,
    "type": "speech",
    "speaker_name": "Sen. Joe Nyutu",
    "speaker_title": "",
    "speaker": null,
    "content": "Thank you, Mr. Temporary Speaker. I join the Senate Majority Leader in saying that the Senate should be given equal recognition, if not more recognition, by the Ministry, especially because health is devolved. I only hope and pray that that is not aimed at maybe preparing the ground for laying off some people. Coming to my question, especially regarding the baby from Nyandarua County, I would like the Cabinet Secretary to tell this House what SHA is doing for patients whose medication is not available locally. I say this because there are very many rare diseases. I do not know whether she knows about Gaucher disease, which is a rare disease whose treatment is not available locally. Where aid is given, there are very many high taxes charged by the government from those donors. So, what exactly is the position on rare diseases, especially those whose treatment is not available locally and what is SHA doing about the same with specific reference to Gaucher disease?"
}