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{
    "id": 485439,
    "url": "https://info.mzalendo.com/api/v0.1/hansard/entries/485439/?format=api",
    "text_counter": 17,
    "type": "speech",
    "speaker_name": "Hon. Were",
    "speaker_title": "",
    "speaker": {
        "id": 153,
        "legal_name": "David Aoko Were",
        "slug": "david-were"
    },
    "content": "Thank you, hon. Deputy Speaker. Hon. Mwaura asked a question on albinism and I have the response. On the first issue regarding the persistent reports in the media depicting non-action by police regarding several incidents over time involving people with albinism; there was an assertion that various such persons, including children, have been abducted or have disappeared without a trace, yet no investigations appear to have been carried out; this inaction by the police has left the victims to live in fear. The response is that no such cases have been reported to the Ministry. However, the Member is kindly advised to seek relevant information on this matter from law enforcement agencies. On persons with albinism continuing to suffer from marginalisation in society, humiliation through derogatory name calling and facing the danger of ritual killings as has happened in the neighbouring countries as well as lack of public awareness of this condition and a delay in implementing a programme to provide sunscreens to persons with albinism, the response is as follows: The money to purchase sunscreen lotions was first allocated to the then Ministry of Gender, Children and Social Services in the Budget of 2011/2012 and after consultations it was found prudent to have the programme domiciled at the Council of Persons with Disabilities. The Council entered into an agreement with organisations for persons with albinism to create awareness in the public on albinism in order to fight the stigma; in particular the agreement was with the Albinism Society of Kenya, Kenya Albino Child Support Programme and Albinism Empowerment Network. These were the only organisations registered by the Council that were serving the sector. The awareness creation programme is ongoing. The Council initiated a process of procuring sunscreen lotions in March 2013 and in October 2013, the lotions were delivered at KEMSA in readiness for distribution. This delay was a result of petitions to the Public Procurement and Oversight Authority (PPOA) and court cases by persons who did not win the tender to supply the lotions. It also took some time before the lotions were approved by the Pharmacy and Poisons Board (PPB) and other Government bodies that regulate drugs and pharmaceuticals. The electronic version of the Official Hansard Report is for information purposesonly. A certified version of this Report can be obtained from the Hansard Editor."
}