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{
    "id": 827205,
    "url": "https://info.mzalendo.com/api/v0.1/hansard/entries/827205/?format=api",
    "text_counter": 174,
    "type": "speech",
    "speaker_name": "Sen (Prof.) Kamar",
    "speaker_title": "",
    "speaker": {
        "id": 33,
        "legal_name": "Margaret Jepkoech Kamar",
        "slug": "margaret-kamar"
    },
    "content": "If that assumption can be carried, it will allow the agency to collect data and say that they have not found the subjects and that is why they were not able to inform them. It is important that we come out clearly that they must search or find the subjects and give them the rights that have been articulated in Clause 1(10). If we allow a weak point, it is possible that anyone can use or misuse it. I am again persuading the Committee to re-read the (3) in relation to (1), but bear in mind that if somebody has chosen a certain subject or subjects or a range of individuals, they already know where they are and there should be no excuse that they are not finding them because if you give them the excuse, a lot of data will be collected. I gave the example of what happened with our HIV/AIDS testing in Majengo. To date, we do not know where the data or the subjects went and we do not know whether it succeeded. If that had succeeded, HIV/AIDS scourge would have been over in this country. The excitement that we saw from the Oxford University that they had discovered something out of HIV/AIDS subjects that would not make them die of the disease never came back to us. We would have expected them to tell us five years later, that they are still well. Ten years later, they would have told us that it is perfect and that medication would have been subjected to everybody else, but it did not. It is important that they take responsibility for the data they are collecting and be forced to collect that data properly. I know that I have dwelt more on the medical aspect of data collection because that is where our people become victims. Human beings are used to collect data that would have been collected from rats or mice and it becomes dangerous if we do not The electronic version of the Senate Hansard Report is for information purposesonly. A certified version of this Report can be obtained from the Hansard Editor, Senate."
}