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{
    "id": 827336,
    "url": "https://info.mzalendo.com/api/v0.1/hansard/entries/827336/?format=api",
    "text_counter": 305,
    "type": "speech",
    "speaker_name": "Sen. Halake",
    "speaker_title": "",
    "speaker": {
        "id": 13184,
        "legal_name": "Abshiro Soka Halake",
        "slug": "abshiro-soka-halake"
    },
    "content": "Madam Temporary Speaker, I thank you for your very detailed and passionate contribution. It was very enlightening, using very authentic and real examples of how our medical data could very easily be misused or used for purposes which were not the original intention. You spoke to the quality and integrity of our data with regard to the medical records and data that has been used for research and other purposes, especially in the fight against HIV/AIDS. For instance, sex workers have been used as data subjects and we do not know the outcomes. Was it just for fundraising by researchers or was there useful information? Sex workers in Majengo area in Nairobi were used as data subjects for HIV/AIDS prevention and research, and we do not know how far it went. These are some of the things that give us real examples and not just abstracts. We take note of the principles, guidelines and experiences of medical research subjects. I reassure you that we have amendments that will come with regard to this area, based both on the interaction within the Committee and also inputs from different stakeholders. There was very robust public participation designed in stages, first, to take care of the business perspective and then the people that would be data subjects or just normal citizens; the „Wanjiku‟ as we like to call them. We also had stakeholders, including the Government and other agencies that do similar things. We assure you that this is all taken care of. With regard to the data protection and mandatory sub-clause that you proposed, we will definitely make sure that, that is considered within the Bill."
}