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{
    "id": 950562,
    "url": "https://info.mzalendo.com/api/v0.1/hansard/entries/950562/?format=api",
    "text_counter": 159,
    "type": "speech",
    "speaker_name": "Sen. Pareno",
    "speaker_title": "",
    "speaker": {
        "id": 13180,
        "legal_name": "Judith Ramaita Pareno",
        "slug": "judith-ramaita-pareno"
    },
    "content": "Mr. Deputy Speaker, Sir, I do not know at what point that whoever did the law that takes care of the rights of PWDs ended up leaving out this particular group that should have been included. I am proposing that we need an amendment to the Act, so that when we refer to PWDs, then these people with neurological disorders are also included. That will open up a lot of opportunities for them. The reason we have this Motion today is because at some point, there was an oversight and they were not included as part of PWDs, yet it is clear that they are disabled in terms of their perception, senses, speech, hearing and better described as psychological and nerve issues that they suffer from. Therefore, I propose that we amend the Act to include these people as part of PWDs. Mr. Deputy Speaker, Sir, this Motion goes a long way to ensure that those that are entrusted with these children are given some training. There is so much that involves the caregiving and the comfort of these people. A policy will go a long way to ensure that they get proper handling and training on how to handle them when they are sick. A framework will also ensure that once services are given, the caregivers will be less stressed. You can imagine the parents who take care of the people with these disorders. They are so stressed up to the extent that they also need some sort of care, support, training and comfort, for them to undertake their duties. An honourable Senator told me that they have a relative who said that they would not work or get another baby because they could not afford getting another one with the same disorder. This is because taking care of a child with these disorders is a full-time job. Even taking care of an adult with the same condition is a full-time job. They need to be assisted, so that they get less stressed. They will also get psychological support with this kind of framework. The Inua Jamii Government funds are directed to help PWDs. As the phrase says, these funds are meant to uplift the standards of the people. We cannot uplift the standards of our people if in the first place we are leaving out a whole lot of people with neurological disorders. These funds should also be directed towards improving their lives. If an amendment to the Act or any law to include them to benefit from these funds is needed, then that is the direction that should be taken. We should be working on an amendment to ensure that they are included in these funds that are directed to the needy groups. This also goes to tax relief on some of items. Suppose they required some specialized treatment, bed and wheelchairs; this Motion proposes that we get tax reliefs for provision of these services in support of these needy persons. The quarters given in terms of tenders, services to the youth, women and PWDS should be extended to this particular lot that seems to have been left behind. After we have a policy and legal framework that helps them to develop these people and the environment under which they live and are being taken care of, the families will stop hiding them. We know of cases where some Non-Governmental Organizations (NGOs) have gone to the extent of getting these children from hide-outs because families are embarrassed about them. They are not able to support them or even The electronic version of the Senate Hansard Report is for information purposesonly. A certified version of this Report can be obtained from the Hansard Editor, Senate."
}