Prof. Margaret Kamar

All parliamentary appearances

Entries 971 to 980 of 3061.

• 6 Nov 2018 in Senate: Mr. Deputy Speaker, Sir, Clause 8 of this Bill, therefore, becomes extremely important. It says- “An agency that collects or processes personal data shall ensure that the data is complete, accurate, up-to-date and not misleading, having regard to the purpose for the collection or processing of the personal data.” When this Bill becomes operational, we will need to agree as a country on who will ascertain that the data is complete, accurate, up-to-date and not misleading. This is because in most cases data is collected from individuals who are not aware of the accuracies, completeness and whether or not the ... view
• 6 Nov 2018 in Senate: Again, in the case of Majengo slums, a publication was done in the United Kingdom (UK). It was said that the subjects were informed that they were being tested on a drug that was supposed to help them as HIV/AIDS patients. Whether the data was complete, accurate and not misleading is another story. If that data was not misleading, today, HIV/AIDS could have been wiped, not just in Kenya but in the whole world. This is because the excitement that came with that experiment was that there was a breakthrough. There was a pill that was tested on prostitutes in ... view
• 6 Nov 2018 in Senate: Mr. Deputy Speaker, Sir, this Bill is important especially as far as the process is concerned, so that people are protected. We need to understand who will ascertain the completeness, accuracy and whether the data is not misleading. Therefore, there will be need to have another body in this country that will regulate data collection. There has to be an independent body, like the Kenya Bureau of Standards, whose results can be believed by everybody. The body will be able to say that a collection has been done. view
• 6 Nov 2018 in Senate: No, Mr. Deputy Speaker, Sir. I meant the Kenya Bureau of Standards (KEBS) in terms of testing of the quality of products in this country. view
• 6 Nov 2018 in Senate: Thank you, Mr. Deputy Speaker, Sir. The KEBS is one such body whose data when we receive it, we all trust it. I know that our medical boards have bodies that look at these. This kind of assignment being given by this Bill is a major one. It will require another body that will look at the quality and how subjects are being handled when data is being collected. Mr. Deputy Speaker, Sir, the agencies that will be allowed to collect data must be tested in advance for quality of researching, data collection and integrity. This is important because when ... view
• 6 Nov 2018 in Senate: where the researcher rounds up students who are desperate for research funding and use them as researchers. It is good that we be clear that, for data collection, the individuals that are allowed to collect data must be vetted in advance. This is the only way we shall be sure that the quality of the data collected can be trusted and that they also understand the regulations that go with it or the rights of the subjects as articulated in this Bill. Mr. Deputy Speaker, Sir, Clause 9 (a) of this Bill states- “A data subject has a right to- ... view
• 6 Nov 2018 in Senate: I want the Vice Chairperson to be given a chance to get this point. view
• 6 Nov 2018 in Senate: Mr. Deputy Speaker, Sir, I want the Vice Chair to take note of one area in this Bill. That it is not just a right to access the data with respect to the data subject, but we must have a mandatory sub-clause that requires the agency to present the data to the subject. Even if you have the right to access data, where will you access it? How will you know the data is ready for access and who will tell you that your data is ready for access? It is only fair to ensure that once the data has ... view
• 6 Nov 2018 in Senate: It should be mandatory to present the data to the subjects before publication. Again, once it has been published, if corrections are done once it has been published and the subjects are ignored, it would be difficult for the subjects to come back for correction. My very humble suggestion to the Vice Chairperson is that they should make it mandatory. We can re-introduce this as we are correcting the Bill. We should make it mandatory for the data to be presented to the subject before publication so that they are signed off by the subjects themselves. Mr. Deputy Speaker, Sir, ... view
• 6 Nov 2018 in Senate: That is why I was saying that they must be mandatory after that. view